Canadian singer Celine Dion’s sister has revealed new details about her neurological condition known as Stiff Person Syndrome (SPS). In a 7-hour media interviewClaudette Dion said her sister “works hard, but she can’t control her muscles.”
Dion already Canceled in early 2023 All the dates of their tour until next year, due to this condition, despite its consequences, did not take away their hope: “In our dreams and in your dreams, the goal is for you to return to the stage,” added Claudette. .
Sister of the late 90’s artist who sang the iconic song My Heart Will Go On As part of the film soundtrack Titanic, explained that it was already difficult for Celine to sing because the vocal cords are also muscles. However, many people on social networks His statements have been questioned And they find it hard to believe that this development is so sudden.
“It’s a one-in-a-million case, and scientists haven’t done much research because it doesn’t affect many people,” Claudette explained.
Following the message, the family charity Maman Dion Foundation That didn’t stop her from receiving thousands of messages of support for the singer, Claudette said. “People tell us they love her and are praying for her.”
[Investigan una rara enfermedad que está afectando a perros y puede ser mortal]
Suffering from uncontrollable and painful muscle cramps, Celine Dion revealed her diagnosis in December 2022 and canceled dates on her European tour in February of this year, although she called it off entirely in May.
Claudette qualified Another interview for Hello magazine Like his sister “A strong woman does everything she can to recover”The family hopes that “doctors will find a cure for this terrible disease without any treatment.”
“There was nothing we could do to support her and ease her pain,” explained Claudette, referring to the severe cramps her sister suffered.
The singer, who lives in Las Vegas, has stayed out of the public eye since announcing the cancellation of her tour.
What is Difficult Person Syndrome?
Affecting one in a million, this rare disease is a rare and progressive neurological disorder that causes muscle stiffness in the body, legs and trunk. American National Institute of Neurological Disorders and Stroke.
It also makes patients “hypersensitive to stimuli such as noise, touch and emotional distress, which can trigger muscle spasms”, causing “abnormal postures, often stooping and stiffening”.
Sufferers of the syndrome “may be unable to walk or move, or be afraid to leave the house”.
SPS affects twice as many women as men and “scientists don’t yet understand what causes it,” although research says it’s “an autoimmune response that is diverted to the brain and spinal cord.”
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